Thursday, January 19, 2012

the fat lady hasn't sung, quite yet

Slept awfully well last night. This morning the usual mixed thoughts about food--hungry, but simultaneously gut-churning a little. Two hours and I'm off for what I hope will be my last infusion for a while. I am going to take extra fluids again with this one--which will make it longer--but it will be worth it if it precludes the low bp I had a couple times back. It may also help with constipation which is still dramatic during tx weeks. I will be glad to see the last of that. It usually resolves in the week following tx. Actually, the official pill taking will finalize tomorrow morning when I down my last 5 prednizones. (I don't recall that I blogged about what those steroids have been for, since I only found out a couple weeks ago myself. They are supposed to stimulate the immune system.)

Then in two weeks, I will drink the barium shakes again and get another CT scan. AbJ is being careful about the outcomes here. I can understand why. I have not been able to get him to tell me how frequently he sees a reversal this quickly after a positive outcome just a few weeks previously. (Lies, damn lies, and statistics are located there.)  If the CT scans are good, then no further tests for 6 months. I will have to be available to get my port flushed out every 6-8 weeks, but that won't preclude some travel which we are contemplating. At that point the booster sessions begin.

On the bright side, in a couple weeks or so, I will be able to resume my regular social activities!

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